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The Care Coordination Conundrum and Children and Youth with Special Health Care Needs

Authors: Bachman, S.S., Comeau, M., Jankovsky, K.

Date: 2015

Project: LPFCH Care Coordination Project

Keywords: CYSHCN

In a 2012 survey, families with children with special health care needs (CSHCN) identified care coordination as their top priority. At its best, care coordination is a covered service—a command center, of sorts—that addresses the interrelated medical, social, developmental, behavioral, educational, and financial needs of children and their families. But there is great confusion over who is responsible for providing care coordination services, who should pay for them, and how to get reimbursed for such services. As a result of this inefficiency, CSHCN and their families experience even greater difficulties. This report, funded by the Lucile Packard Foundation for Children’s Health, discusses why care coordination has been insufficiently financed and reimbursed to date, and what can be done to address these challenges.

The TEFRA Medicaid State Plan Option and Katie Beckett Waiver for Children

Authors:

Date: 2012

Project: The Catalyst Center

Keywords: Medicaid/CHIP

Making It Possible to Care for Children with Significant Disabilities at Home

The Catalyst Center’s State Data Chartbook offers a comprehensive array of data from a variety of different sources on the coverage and financing of care for children and youth with special health care needs (CYSHCN). One of the data indicators found in the Chartbook under the topic area “Factors Influencing Health Insurance Coverage” tells users whether or not a specific state offers Medicaid eligibility to children either under the TEFRA state plan option or under a Katie Beckett home and community-based services waiver. This article provides an introduction to the two options and how they came into existence.

Expanding Access to Medicaid Coverage: The TEFRA Option and Children with Disabilities

Authors: Wilson, K. , Dworetzky, B. , Comeau, M.

Date: 2015

Project: The Catalyst Center

Keywords: Medicaid/CHIP

This policy brief explains what the Tax Equity and Fiscal Responsibility Act (TEFRA) means in terms of creating additional pathways to Medicaid for children, a comparison of TEFRA and HCBS waivers, how TEFRA affects children with special health care needs, and suggested improvements that could provide further support to families.

Webinar: What is the Medicaid/CHIP Tutorial and What’s In It for Me?

Authors: Comeau, M., Tobias, C., Dworetzky, B.A., Hess, C.

Date: 2012

Project: The Catalyst Center

Keywords: Medicaid/CHIP

The Catalyst Center hosted a 5-part webinar series to provide an overview of our newly released Medicaid/CHIP Tutorial, Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children’s Health Insurance Program (CHIP). This first webinar explains how and why the tutorial was developed, gives examples of Title V and Medicaid/CHIP Partnerships, and what’s covered in the tutorial.